Psychological aspects of living with rare disease: development of psychological skills of rare disease patients. How to improve patients’ quality of life by developing psychological skills necessary to cope with the disease
نویسندگان
چکیده
Based on the example of psycho-education project for PKU (Phenylketonuria), patients and carers in Pomerania region (Poland), could draw general conclusion: for the improvement of patients well-being, not only medical care, but also psychological knowledge and skills are very important. Some psychological skills are crucial to cope efficiently with the disease and patients and carers should be trained. The project of psycho-education for PKU patients and carers in Pomerania includes workshops designed especially for 3 target groups:
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